Many people don’t realize how hard it can be to navigate the world around them until they or someone they care for suffers from a life-threatening illness. Activities like entering and exiting a vehicle, getting into bed, going on walks, participating in family activities, and breathing quality air are a constant struggle for several of our Wishing Star families.
Wishing Star aims to make life easier for these people by increasing their quality of life.In fact, 1 in 5 of our Wishing Star families has been granted a wish that eases their daily struggles.Many of our children face life-long disabilities such as cerebral palsy or epilepsy. While a trip to Disneyland might not appeal to a child who is non-verbal and confined to a wheelchair, the gift of a van ramp so she can more easily leave the house with her family could make an enormous impact.
Twelve-year-old Abe suffered from a rare neurological condition (Pelizaeus-Merzbacher Disease) that prevented him from regulating his body temperature. In the warmer months, this condition was a struggle for Abe as his house did not have central air conditioning. His family’s wish was for him to have an air conditioning unit installed in the home. Abe had a wall unit in his bedroom at the time, which confined him to that one room of the house, away from the rest of his family. They wanted him to be able to spend time with them in the other living areas of the home. Being with his family in the main house was necessary to increase the family’s quality of life, and Wishing Star was proud to help grant their wish. You can learn more about Abe inthis YouTube video.
If you’d like to make life a little easier for children like Abe, please click the button below to make a secure online donation. Thank you for your support!
One of the many troubling aspects of having a child diagnosed with a life-threatening illness is the feeling of isolation.
Depending on the scope of the illness, parents find themselves lost in a flurry of doctor’s appointments, medical consultations, physical therapy sessions, and the never-ending task of wrapping their minds around their current situation. Friends and family struggle with finding ways to comfort their loved one, and the parents struggle with relating to those around them. Then the day comes when the child is referred to Wishing Star.Through the loneliness and isolation, a beacon of light appears.The parents meet with people who understand, people who can nod knowingly when they express frustration, people who can sense the tears are coming and have a box of tissues ready. These supportive people aren’t just Wishing Star employees; they are other families who are going through (or have been in) similar circumstances. These supportive people provide one another with a sense of community.
Through private gatherings and public events, our wish grantees support each other. Many give back to Wishing Star in other ways, whether it be volunteering at events or attending our fundraisers. Many more stay in touch years after their wish has been fulfilled.
Kim, whose daughter Maddie received a wish several years ago, had this to say: “Our hearts and lives were touched so deeply by the Wishing Star staff’s generosity that they have become family.My husband now sits on the Wishing Star board. Our middle daughter, Cassie (pictured right), has helped with a summer program for Wishing Star in the past. Maddie’s journey certainly helped mold each of us into more caring, compassionate people desiring to reach out to help support others. Thank you to Wishing Star for all you did for Maddie and continue to do for our family.”
To read more about our Beyond the Wish program and how it helps our families, click here. To provide financial support to keep the sense of community alive, please make a secure online donation by clicking the button below.