Quinn has Mitochondrial Disorder, a disorder in the part of the cell that sustains energy and promotes growth. This illness has a very high fatality rate. Three year old Quinn’s wish was to go to San Diego to play in the warm water and ride in a helicopter! He and his family enjoyed a week of sunshine, warm water, a helicopter ride, swimming with dolphins and so much more!
“You know it’s not good news when your child’s neurologist calls you and is in tears,” said Quinn’s mother, Magdalena. “And when you have a kid who is that sick- who can go from playing in the backyard to needing to be in the emergency room in a matter of seconds, you start to narrow their world because you want to keep them safe. I can change a feeding tube in 30 seconds, I can manage medication lists, and I can argue with any medical personnel on the planet and not back down- what I had forgotten was how to have fun with my kids.”
“Every day of our trip we had this blue wish notebook. My kids called it the book of awesome because every single day was something new that was amazing and wonderful. When we came home we made a commitment as a family that we were going to carry on the lessons we learned during Quinn’s wish trip- to have fun together as a family. I want Quinn’s life to be a celebration, and our job is to love him until it’s time to let him go.”
“I really want to thank Wishing Star because they gave us a chance to play with Quinn and to really see him as not being a little boy with a collection of diagnoses, but as a person. Every moment with your kids is irreplaceable- it will never come back…I see a difference in Quinn, and I see a difference in all of my kids.”